Year 7, Book 13

13. Immortal Bird: A Family Memoir by Doron Weber
Again, I picked up a galley of this book at ALA Midwinter and wound up really enjoying it. It’s the true story of Damon Weber written by his father Doron. Damon was born with a congenital heart defect that seemed to have been taken care of during surgery as young child. Yet now entering his teenage years Damon all of a sudden seems to be once again fighting for his life. He is diagnosed with PLE, an illness that a small percentage of people born with his heart defect eventually develop, which depletes the protein in his body. It is a poorly understood rare disease that leaves the Webers struggling to figure out the best way to treat their son. Over a number of years that gradually move from less invasive treatments trying to prevent Damon from needing to have a heart transplant. It is the struggle of a father to keep his son alive and a young boy trying to hold on to some semblance of his life while facing a very serious illness. It also touches on the challenges of dealing with a medical system that often seems to provide more harm than good. It’s a heartbreaking story filled with love and hope. I give it an 8 out of 10.

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